The narrative of Brenna is one of conquering any and all hurdles, as well as a lesson of how pure a parent’s love is.
There are parents out there who surrender to their kids just since they are unusual.
That is why it is critical that we bring encouraging tales to people’s notice, stories in which parents and kids demonstrate that no task is too great as long as you work together.
It’s also a valuable lesson for everyone who has ever evaluated someone by their appearance.
Courtney and Evan Westlake were living happily with their son Connor when they found out Courtney was pregnant again.
Obviously, the couple was overjoyed to learn that their family would be growing.
They were looking forward to their first ultrasound, just like any other pregnant parents.
Every time they left the hospital, the physicians assured them that their developing kid was in good hands.
Courtney and Evan discovered they were having a daughter a few months into their pregnancy: Connor was going to have a little sister!
The couple was pleased and started to fantasize about what a young girl would bring to their household.
He’ll have to learn to braid hair now, dad Evan said.
The big day arrived several weeks before New Year’s Eve. The baby girl was delivered, but the couple’s hopes to introduce her to her new home were shattered.
Brenna, their daughter, was born with thick white scales. She wasn’t moving, had an unusually high body temperature, and was covered in sores all over her body.
Brenna needed emergency intensive care or she would perish.
Courtney and Evan could only hold their baby for the first time two weeks after she was born.
Brenna was born with a terrible inherited illness called Harlequin ichthyosis, which they discovered. Brenna’s body produces skin 10 times too quickly as a result of the condition.
It produces redness all over her body, as well as irritation to her eyes, lips, nose, and ears.
The condition is incurable and frequently lethal.
With all of the physical obstacles that come with Harlekin ichthyosis, the parents realized they were in for a long journey.
When Courtney is out with Brenna, she frequently encounters individuals who point, make loud comments, or ask offensive questions.
It saddens her. She understands that youngsters are drawn to Brenna because of her unusual features.
What irritates Courtney the most are the remarks she receives from many parents. When parents see Brenna, they take their kids away from her and instruct them to be silent when they go close to her.
Courtney would appreciate that parents approach her and Brenna rather than turning away and departing the playground.
Brenna, on the other hand, is a strong and confident little girl who refuses to let anybody knock her down. She believes in herself because of her family’s encouragement.
Particularly from big brother Connor, who adores his little sister.
Courney expresses that why do parents avoid interacting with persons who seem different? What are they scared of? They might easily approach her and ask how old Brenna is, adding that why can’t parents just be honest and say, ‘I don’t know, but it doesn’t matter how we look,’ when their child wonders why Brenna is so red and swollen? Aren’t we all unique?
Although their difficult days, Evan, Courtney, and Connor are right to be proud of their little fighter. Dad Evan bathes his daughter every evening, which must be done properly and meticulously every day.
The same man who was joking about braiding her daughter’s hair now gently but methodically rubs her with a towel to remove scaly skin.
Brenna’s illness also means she doesn’t have much hair, but her father gently combs the hair she does have every day.
Brenna is, in most aspects, like any other kid. She enjoys spending time with her family, especially playing and listening to bedtime tales with her father and older brother.
Brenna’s parents are certain that she can accomplish whatever she desires in life, despite the fact that things haven’t gone precisely as expected.
Courtney currently writes about her family’s life on her blog, Blessed by Brenna, and has authored a book, A Different Beautiful, which was released in August 2016.
The family believes that their honest and heartfelt narrative will help others recognize and accept those who are different from them.
And isn’t Brenna lovely exactly the way she is?
Please share Brenna’s inspiring story in order to assist her and her family in raising awareness of her disease.
We can work together to guarantee that all kids have a pleasant, prejudice-free childhood.