Little Pippa Atkinson was born with Epidermolysis Bullosa, an incurable skin condition that causes her skin to blister at the slightest touch. It is painful, and her parents, Rhiannon and Damien, have to give her morphine daily to deal with it. And sometimes, they have to sedate her, because she can get up to 200 blisters a day, and all of them have to be lanced.
Her condition was so bad that she could not be held by her mother or father for the first 5 months of her life, and now, the 23-month-old has to be watched carefully. To help out the little girl and her family, volunteer tradespeople known as the Band of Builders have constructed a special area in the family’s South Wales home that includes a hydrotherapy bath and a changing spot.
The materials to build it have been donated by major companies across the UK that became aware of little Pippa’s condition. Volunteers traveled from across the country to team up in building the special room.
Says Rhiannon: “We cannot thank Band of Builders enough for what they have done for Pippa and us as a family. Pippa’s new bathroom will not only make her life easier but mine too. They are an absolutely amazing group of wonderful, incredible people and it was a pleasure to meet all of them.”
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