Fed up mom respond to strangers for mocking her daughter with very rare skin disease

Rebecca Callaghan’s pregnancy in 2012 was challenging, and physicians chose to induce delivery early owing to excess fluid surrounding the foetus. Nobody realised there was something wrong with Matilda until approximately a half-hour after she was delivered.

She was born with a large blue mark on her face that extended down one side of her body. Doctors initially assumed it was simply a bruise, but soon realised they had made a significant error.

After only 30 minutes, the physicians informed the parents that it was a birthmark. Matilda was diagnosed with Sturge Weber’s syndrome two weeks after her birth, an extremely uncommon neurological skin illness that also involves paralysis, learning impairments, and seizures.

Matilda fell unwell soon and was transported to the Adler Hey Children’s Hospital in Liverpool, England. In a matter of days, the parents’ joy had changed to acute worry. They didn’t understand whether they’d ever see their little girl again.

Her father explained that because she was so unwell, they couldn’t travel with her. They didn’t know if they would see her again as they stood there watching her be hauled away. They had been so happy about their baby’s coming, and now they didn’t know if they’d ever see her alive again.

On addition of that, they discovered Matilda had two holes in her heart. But she was a warrior, and despite the fact that she had a little survival rate, she made it through operation. Matilda also started laser treatment to get rid of her odd birthmark. However, it might take up to 16 years to totally disappear.

She receives treatment every couple of months, and the laser does make it seem more red and furious, and her face is covered with spots afterwards, which then slowly slowly disappear again, Matilda’s father Paul remarked.

Matilda was a cheerful little girl though having to endure harsh laser treatments on a daily basis. Many individuals, however, were drawn to Matilda and her birthmark. People even questioned Paul and Rebecca for leaving their kid too close to a radiator and allowing her to get burnt.

Matilda’s dad, Paul, has stated, they just see what’s in front of them and rush to harsh assumptions. He hope they could see beyond the birthmark and recognise what a precious little angel she is.

Aside from the birthmark on her face, the condition has rendered Matilda nearly blind. She, too, is unable to walk, but she has been able to take a few steps owing to a customised walking apparatus.

Matilda’s entire life has been a struggle, yet she always has a grin for all she encounters. Her father describes her as a stubborn little girl: “It’s either her way or no way!”

Daily, the family is subjected to glances, comments, and downright derision. Despite all that has happened to her, she always has a grin for all. She’s doing extremely well, stated her dad.

They are very delighted of Matilda; she is incredible simply treat every day as a gift. Matilda is now eight years old. The family seems to have tweeted a current photo of the daughter in her wheelchair in June 2019.

The crowdfunding project aimed to raise $6,300 to assist purchase a new wheelchair.

The website says, they are seeking funds to equip her with a new chair so that she may manage to do what she likes most, spending time outside and away from riads and crowds.

According to the website, the child’s grandfather died lately.

Please SHARE Matilda’s tale so that more individuals can help the brave little girl obtain the new wheelchair she deserves to live her life to the fullest!

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