Eline Leonie, despite being so little, however,provides a good example for the whole world of strength and affection for life. Eline Leonie was born on November 14, 2019, weighing 1200 grams and standing 38cm tall. When Eline was born, she was diagnosed with neonatal progeria.
Progeria is an extremely strange disease, it is a progressive genetic disorder that accelerates the aging of kids. It is also known as ‘Hutchinson-GilFord Syndrome’ and generally occurs after the age of two years. Eline’s Neonatal Progeria, on the other hand, was visible in her life immediately.
Mother Eline wrote from pregnancy to the last moment of the little angel on her Instagram status line. This causes the reader to feel extremely sorry. She explained that from the 20th week of pregnancy, it is apparent that Eline is not like normal infants. The belly is much smaller than usual and the heart is too big. She proceeded to an ultrasound. The doctor suggested an amniocentesis should be tested, but she refused the offer. She was 28 weeks pregnant at the time of her hospitalization. Eline displayed no signs of growth. She was incredibly worried and insecure since Eline’s heart stopped for a few seconds and then continued to beat fast again. And immediately following this occurrence, the doctor ordered an emergency Eline caesarean section. Eline was born on November 14 at 16:26 with a weight of 1200 grams and a height of 38cm.
Eline is severely debilitated and can’t develop heart muscle and digestive problems. Even after many investigations, doctors did not know why Eline had such a rare genetic defect. All the genetic tests done by her like the father cannot explain why such a rare disease could develop in her baby.
The average life expectancy for children with Progeria is around 13years. Some may die younger and others may live longer, even into their 20s. Eline cannot breastfeed on its own like other kids, it is extremely difficult to eat and toast to maintain its life. A large portion of the food Eline gets from birth comes through a tube. During the hospital stay the mother expressed that she guaranteed her dear Eline that there is a better world outside the hospital. At last, the promise came true.
On February 21, 2020, the mother and daughter were finally discharged after 100 days in the hospital. Mom Eline was overjoyed, delighted, joyful, a sensation of inexplicable happiness, mingled with joy and little insecurity. Finally the little girl may see the world around her and return to her beloved family. She spent all of her predictions on her daughter’s life, it was no longer long, so she focused the time she had on the happiest, most lovely moments for Eline. She laughs all the time in her life, which is the greatest. Love is the most precious treasure to heal kids.
Eline, on the other hand, was no longer strong enough to continue with her mom to continue her journey to fight that evil disease. She celebrated her first birthday on March 7, 2021 and 3 months after that she passed away. This route has not been simple, however the bond that exists between Eline and Michelle, her mom, have made them both appreciate each other to the utmost.
Rest in peace precious little angel.
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